My blog posts were few and far between before this one, but this is really taking the (diabetic) biscuit.
Its six months!!
People that do not know me may have thought that I had died (Unlimited edition).
This post is a bit of a downer, but its not all been doom and gloom. There have been some great times, including me getting engaged to SJ
and a project that is up and coming (more of which on a later blog) and a fantastic trip to Derry.
Speaking of which
With Paddy Nash and Diane Greer (and Funky Lol) doing Paddy’s song Rubber Bullets
They say that a week is a long time in politics.They say it takes a second to score a goal. (hang on, this could make for a great lyric)
Im not sure who ‘They’ are. They may be a Rutles type parody of Van Asda’s 60’s top pop group.
For me, the last 6 months have been the same health wise as the time I stopped my cancer treatment. That was at the end of December last year.
To be honest, I am sooo fed up with feeling like this.
THE FATIGUE, THE FATIGUE!!!! Charlie may not surf, but he gets tired at the drop of a hat.
For a few months, I always fell asleep at around 3pm. Luckily this has stopped now. It would be a waste of the season ticket that I have purchased at Leyton Orient.
Even now, I feel that I am a victim of narcolepsy, as I get such tiredness. On a positive note, as the day goes on, I feel less like going to sleep.
This creates its only problems at night. I now have insomnia and find it hard to sleep at night. I have always found that the best way to doze off is to put me Ipod on and listen to either an audio book or comedy show.
This works up to a point, in that I fall asleep after about 10 minutes, but then wake up again ten minutes later. Now, the smart money would suggest that I should take the Ipod off and then I will sleep. Sadly this does not happen. I cant sleep again! So I put on another Radio Active/Mark Steel/Jeremy Hardy(great bloke but has a thing against non meat eaters AND where have you been since the ConDems took over mate?) or whoever.
I have even tried a couple of those Hypno sleep recordings. They don’t work either.
I am not going to take sleeping tablets. I rattle enough as it is, what with the Diabetes, blood pressure and stopping you getting cancer tablets.
Blimey, this is getting pretty depressing, so here is my favourite band with my favourite (only) son dancing along to them
If I stretch my left arm (the one that I had my lymph glands removed from) back, it hurts like hell (cue Tommy Cooper gag). I cannot carry anything for too long and find walking up too many stairs a bastard and have to rest for about 20 minutes.
Playing with the band is ok to an extent. If I have my bass on public transport, I make sure that I get to the venue early so that I can recover. Recently, in two occasions, on returning home SJ has wanted to call an ambulance because I have looked so ill.
But hey, its not worth moaning about !!!!!!
I had a wonderful fathers day with me girls son and SJ
The mental fatigue can be just as bad. Hence the fact that I have not been able to write this blog for six months.
I am currently on six month check ups which I hope is not too far apart. But I trust my Oncologist. Although, I am not getting a mammogram or scans, just a quick feel of my upper regions.
Sorry that this blog post is so so down.
The main part of my last blog involved the trouble I was having with Seetec. I am pleased to say that the powers that be at Seetec saw my problem and quickly did something about it. My old caseworker at Lewisham got involved and made sure that this would not happen again. If only she had been involved at the start I know that she would have sorted it.
The staff are being educated on how to react to someone in my position.
I would like to thank everyone that supported me both on Facebook and Twitter. The only person that I asked and who did not reply, was my local MP Clive Efford. He was too busy voting in favour of the Govt Workfare thang.
One of the key things about this cancer lark is that you meet people that are also trying to kick cancers arse. Most are better than me at doing so.
Through the Breast Cancer Care Show last year, I was lucky to meet 23 other people that are now my heroes.
Not only that, I was contacted by some through other means like Twitter that I never even met.
One such person was Francesca Marvell. Fran died aged 33 from secondary breast cancer in April of this year.
Fran contacted Breast Cancer Care and got me as a model at The Show last year.
She gave me so much support through Twitter, even though she was suffering herself. She was a great help to me. It is also Fran that I have to thank for getting me into Breaking Bad.
Please read the obit on her here http://www.theguardian.com/theguardian/2013/apr/18/francesca-marvell
And my friend Issy’s tribute to Fran here
Also check out the Issy’s blogs in the Independent on living with Secondary Cancer
Latest one here
So that is it for now.
Life is actually not too bad at the mo, apart from the above.I will be back soon with less doom and gloomage
I am also intending to get my solo music project (Sarcastic Fringehead) back on track, once I get the gumption to do so. In the meantime. Here is my greatest (only)hit
Love peace and better call Saul